Wednesday, 14 March 2018

My Rare Dwarfism Makes Me 1 in 4 Million | BORN DIFFERENT

Posted by Dhruba Shrestha March 14, 2018 :
A LOVEABLE 8-year-old boy has a form of dwarfism so rare he is believed to be one of only 28 cases in the world. Three-foot-tall Landen Johnson, from Lincolnton, North Carolina, has primordial dwarfism, one of the rarest forms of dwarfism in the world, with experts estimating there are less than 100 cases worldwide. But Landen’s specific form of primordial dwarfism, DNA Ligase four deficiency or Ligase 4 deficiency, which also affects the immune system, makes him even rarer: his family say they know of only 28 other cases worldwide, making Landen one in four million. Five months after having a bone marrow transplant Landen still has to go to hospital three times a week, can barely go outside and has to take multiple medications – but Landen’s spirit remains unbreakable.

Guide of the month: January 2018

Traveling gives us the opportunity to disconnect from our regular life. You get to forget your problems/issues for a few weeks, it can also help you figure things out that you would not have understood without the distance traveling can give you. We all have crazy schedules, work and a family to take care of, going away alone or with some friends can give you distance and perhaps even make you realize how important these people are for you. Like the saying says: we never know what we have until we lose it.

Another great benefit is the relaxation you get to do. It’s nice to live life to its fullest and enjoy a stress free time with yourself. Going on vacation lets us recharge our “batteries” by disconnecting us from our regular life. When we come back we feel invigorated and we are happy to be back in our day to day routine. It’s a very good stress remover that has a lot more to give than most people are willing to accept.

Traveling increases our knowledge and widens our perspective. To view new customs, different ways of living is fantastic for the mind. It gives us a new perspective about life and especially our life, it can help us change some of our habits or even create new ones. When I travel I usually make it a point to try new food, some cultures don’t have fries in their diet and they are all skinny, others use spices to give taste and not oils or fats. Discovering different values and ways to get by in life is really interesting. You also need to visit exotic new places and discover what this wonderful world has to offer.